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Quality of Life2017-11-11T06:34:56+00:00
  • AARP: Care Recipients: Go From Guilty to Grateful

    This article offers some practical advice for a keeping the caregiver / care receiver relationship mutually healthy.

  • AARP: Caregiver Guide & Resources

    AARP offers a comprehensive site for caregivers of all ages. Visitors can find planning and discussion aids, information about legal and financial issues, and tips for self-care, as well as stories, encouragement, and links to caregiving in the news.

  • AARP: The Funny Side of Caregiving

    This article offers some practical advice on how to keep caregiving a bit more lighthearted, so everyone involved can say, “I’m ok, you’re ok, we’re all in the soup together.”

  • Acts of Kindness

    Learn to improve on quality of life through acts of kindness. Fear and stress of a situation doesn’t have to take away our spirit.

  • Can I see a sample document that outlines end of life planning?

    This is an example of the customizable 5 Wishes form. The actual form can be purchased at the home site: https://www.agingwithdignity.org/

  • COMFORT Care Curriculum

    This communication guide is meant to train medical care team, but it could be helpful immensely helpful for any caregiver who is juggling resources and hard conversations. COMFORT stands for: Communication, Orientation & Options, Mindful presence, Family caregiver, Openings, Relating, Team.

  • Good Reads: A Collection of Palliative Care Literature, With Reviews

    GoodReads offers a list of books on the theme of palliative care, including fiction, philosophy / self-help, memoir, and collections of patient stories, as well as more technical topics. Readers leave thoughtful reviews on the site, and those with a free GoodReads membership can engage in book discussion forums.

  • Guided Relaxation

    This easy to follow guide walks you through the process of progressive muscle relaxation. Stressful times take a toll on our physical bodies as well as our emotions. Caring for yourself is critical to caring for those you love, so take time to address stress before it builds.

  • How can I calculate how much long-term care will cost?

    This extremely useful list of resources includes free apps (pill identifier, Rx scheduler, etc), a Q & A tool, a Social Security Benefits Calculator, a guided tour of the Affordable Care Act, and more.

  • Improved Decision Making About Feeding Options in Dementia

    This video addresses both logistical and emotional considerations when loved ones are making a decision about feeding a patient with dementia. It includes a list of questions to ask doctors and a guide to next steps. This resource is also available via iTunes: https://itunes.apple.com/us/itunes-u/aging-disability-long-term/id431759148 and in PDF form: https://decisionaid.ohri.ca/docs/das/Feeding_Options.pdf

  • NHCPO Caring Info

    This easy to navigate resource site, available in English or Spanish, includes both logistical and emotional resources for the hospice and palliative care patient and caregiver.

  • Palliative Care Stories

    These short videos offer the user a look at how palliative care improved the quality of life for patients in several different scenarios. Featured are caregivers, patients, and members of the care team.

  • Palliative Care: Four Seasons- Definition of Palliative Care

    With a clear and concise explanation of what palliative care includes, plus a rich printable manual for the “Confident Caregiver,” this is a good place to start for families and patients learning about palliative care.

  • Palliative in Practice: A Blog Discussing Pertinent Issues Across the Full Spectrum of Palliative Care

    This frequently updated blog from the Center to Advance Palliative Care allows patients and families a look at the latest conversations in the news about palliative care. Users can subscribe to receive updates.

  • PalliativeDoctors: Patient Stories

    Vivid stories from all sides of the palliative care experience. Informative, uplifting, and a good reminder that no one is doing it alone.

  • PalliativeDoctors: Talking to Children

    Practical tips for talking to children about illness, death, and dying. Includes links to other resources on the same topic.

  • PalliativeDoctors.org

    This is the patient site for the American Academy of Hospice and Palliative Care Medicine. It is rich with plain-language resources for families, caregivers, and patients, addressing topics such as definitions of palliative and hospice care, questions to ask the medical team, legal documents, and stories from patients.

  • Reflections

    Take the time to use reflection exercises to find where you have experienced value, meaning, connections, and joy in your life.

  • Support Circle

    Identify how to access support and ask for help by using the support circle tool. Build a support system which can be used for both giving and receiving support.

  • Symptom Management Resources: CHF, COPD, Dementia, & Mental Health

    This collection of practical resources will guide you or your loved one through everyday strategies for improving life with an illness. Resources include videos and printable PDFs for quick reference.

  • TED Talk: What Really Matters at the End of Life

    This 20 minute talk by a palliative care physician is a thought-provoking and poetic look at the ingredients of a rich life.

  • The Conversation Project

    This site offers step by step resources for beginning and continuing conversations about end of life decisions with your loved ones. Free “Conversation Starter Kits” and “Talk to Your Doctor Guides” are available for download in several languages. The site also features a collection of personal stories about how conversations can shape life—in all its stages.

  • The Well Spouse Association

    With the motto, “When One is Sick, Two Need Help,” this site includes a wealth of resources for people caring for their sick spouses. There are links to helpful organizations, articles, stories, and other support groups–even a humor section. For a small fee, users can join the organization and participate in forums, newsletters, events in their area, and a mentorship program.

  • Visualization Extracted from Reflections

    Take a moment to relax and reflect on a time in your life where you felt value and purpose.

  • Wheel of Life

    Dealing with a chronic illness as a patient or caregiver may mean having to find a new normal because things can’t be done like they used to. The Wheel of Life tool gives a visual perspective of where we are spending time and having quality of life moments, and how we can have more.

  • Where can I find an easy-to-use document for end of life planning?

    5 Wishes is an easy to use document that allows patients to have a voice in end of life decisions. 5 Wishes is written in everyday language and meets the legal requirements for advance directive in 42 states. This website offers 5 Wishes in online and paper form, in 28 languages, as well as specific information about how the form is used in your state.