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Advance Care Planning2017-11-11T06:35:22+00:00
  • 10 FAQs: Medicaid’s Role in End-of-Life Care

    This straight-forward, up-to-date, and well researched resource answers basic questions about Medicare’s role in palliative care, advance planning, and hospice.

  • Can I see a sample document that outlines end of life planning?

    This is an example of the customizable 5 Wishes form. The actual form can be purchased at the home site: https://www.agingwithdignity.org/

  • Caring From a Distance

    This organization seeks to meet the needs of long-distance caregivers. The site includes information about planning, resources, and finances. It also includes a collection of stories about others’ experience with long-distance caregiving and a portal to log in and keep track of medical information.

  • COMFORT Care Curriculum

    This communication guide is meant to train medical care team, but it could be helpful immensely helpful for any caregiver who is juggling resources and hard conversations. COMFORT stands for: Communication, Orientation & Options, Mindful presence, Family caregiver, Openings, Relating, Team.

  • Fear at EOL

    Addressing our fears help us start to let them go and have more quality of life moments. This video talks about common fears at the end of life and different ways to work through them.

  • Goals at EOL

    No matter how big or small, you can still set end of life goals to achieve. Reach out to people who can help you achieve these goals.

  • Good Reads: A Collection of Palliative Care Literature, With Reviews

    GoodReads offers a list of books on the theme of palliative care, including fiction, philosophy / self-help, memoir, and collections of patient stories, as well as more technical topics. Readers leave thoughtful reviews on the site, and those with a free GoodReads membership can engage in book discussion forums.

  • How can I calculate how much long-term care will cost?

    This extremely useful list of resources includes free apps (pill identifier, Rx scheduler, etc), a Q & A tool, a Social Security Benefits Calculator, a guided tour of the Affordable Care Act, and more.

  • Mountain Coalition for Healthcare Decisions

    An easy way to access NC’s Advance Care Directive in English, Spanish, Russian, or Korean. Site also includes links to events and resources to help users understand why advance planning is important.

  • NHCPO Caring Info

    This easy to navigate resource site, available in English or Spanish, includes both logistical and emotional resources for the hospice and palliative care patient and caregiver.

  • PalliativeDoctors.org

    This is the patient site for the American Academy of Hospice and Palliative Care Medicine. It is rich with plain-language resources for families, caregivers, and patients, addressing topics such as definitions of palliative and hospice care, questions to ask the medical team, legal documents, and stories from patients.

  • Prepare for Your Care

    This easy to navigate site helps users make printable plans for various stages of end-of-life planning using step-by-step questions. Available in English and Spanish.

  • The Conversation Project

    This site offers step by step resources for beginning and continuing conversations about end of life decisions with your loved ones. Free “Conversation Starter Kits” and “Talk to Your Doctor Guides” are available for download in several languages. The site also features a collection of personal stories about how conversations can shape life—in all its stages.

  • The Well Spouse Association

    With the motto, “When One is Sick, Two Need Help,” this site includes a wealth of resources for people caring for their sick spouses. There are links to helpful organizations, articles, stories, and other support groups–even a humor section. For a small fee, users can join the organization and participate in forums, newsletters, events in their area, and a mentorship program.

  • US Department of Veteran’s Affairs: Palliative Care

    This section of the VA’s health care site offers tools for decision making, a definition of palliative care, a list of nursing homes by state, and details about what is and isn’t covered under the standard medical benefits package.

  • Where can I find an easy-to-use document for end of life planning?

    5 Wishes is an easy to use document that allows patients to have a voice in end of life decisions. 5 Wishes is written in everyday language and meets the legal requirements for advance directive in 42 states. This website offers 5 Wishes in online and paper form, in 28 languages, as well as specific information about how the form is used in your state.

  • Where can I find legal advance directive forms for my state?

    This site provides easy access to legal advance directive forms for every state.